I assume you've also heard of NORD (National Organization of Rare Diseases) - NORD
That's a pretty typical starting point, so I'm pretty sure you've already seen it, but I wanted to mention it anyway, just in case.
I haven't heard of Valley Disease. When you find out more about it, please let us know. Medicine is an interesting field, so I'd be interested to hear more about this.
[ 06-30-2001: Message edited by: Linda1 ]